"Fairy Morning Xi" is really beautiful!
Author:Youth Hubei Time:2022.07.10
"Hello, everyone!
I am a fairy morning dawn who loves handmade and lives ""
A rotten and ancient dress
Two playful braids
Under the beauty filter of the live broadcast platform
The girl's beautiful and sweet face is still clearly visible
every day
Xiang Chenxi will appear in the live room on time
Except for the respiratory tube in the throat
This "post -90s" girl
It's the same as other online anchors
"at the same time
I am also one
Maintaining life by the ventilator 24 hours
Patients with rare diseases "
incurable disease
Xiangchen
It is a Hubei girl born in 1992
8 -year -old year
Xiang Chenxi was diagnosed as
"Developing sexual malnutrition"
Doctor explained
As you get older
The patient's muscles will gradually shrink
The ability to move gradually disappears
Until the whole body paralysis
Even respiratory failure
Similar to "Frozen disease"
Pain accompanied by the growth of the following:
Grade Fourth and Five -Year Grade
It's difficult to go up and down the stairs
Junior year
Every time I squat, I need to help others
High school start
When you walk, drag your classmates' arm ...
Barely to high school
She is among the best academic performance
Due to inconvenient actions and unable to take care of yourself, he was forced to take a break from school
"Long bubbles on your feet are basically commonplace"
Reminiscence of Xiang Chenxi
Then
She often cuts the water with scissors
Otherwise, "itching and painful"
Subsequent years
Xiang Chenxi gradually lost
Control of your body
"Not standing
Will fall straight down "
Xiang Chenxi
"Head to the table
Tuck on the bench under the table again
Stick to the ground again "
Early 2020
Xiang Chenxi's condition worsen again
Urothed pulmonary hypertension
Dangerous life
When I was just hospitalized
Xiang Chenxi's blood oxygen saturation is only 55%
Pulmonary troops may occur at any time
She even proposed to the doctor
The wish of donating the remains
Fortunately
This strong girl came over
Unfortunately
In addition to eating and washing every day
She must be accompanied by the ventilator for the rest of her life
"Life is beautiful
Just live
There is infinite possibilities "
Xiang Chenxi said to fate
Suffer
In order to reduce the burden of the family
Wu Chenxi independent
Try many jobs
suddenly
She came into contact with clay hand
A pile of clay is in her hands
It seems "with life and color"
The shelf behind Xiang Chenxi was filled with her clay hand -made
Because the arm can't lift
On the huge desktop
The area that can move freely
There is only one palm size
Because I can't sit for a long time
She can only concentrate in a certain period of time
Use your whole body to pinch the clay hand
Because it can't bend down
She can only do it from a distance
Shape the facial features with a stiff wrist
Then use a very detailed brush to color the facial features ...
Each production
As if all of her life, she would use all her life
She called this
"One of the bitterness of a non -people"
Xiang Chenxi's hand -made
Constantly learning
Xiang Chenxi summarized
A set of clay hand -made production tutorials
And record it into a video upload to the network platform
March 2019
Her "Morning Clane College" was successfully launched
For three years
More than 500 "trainees" have already
Join the online college to study one after another
The handsome appearance, cheerful personality, humorous words, and inspirational life experience have made Xiang Chenxi attract attention on the live broadcast platform
2016 to the present
She produces and teaches through hand -made
I earned more than 200,000 yuan income
Affect most of your treatment costs
In her online shop
There are also 23 part -time "hand -in -law"
some of
There are many rare patients and disabled people
And the mother who is at home
Xiang Chenxi lives in the rental house in Wuxi, Jiangsu
In the live broadcast room
Xiang Chenxi is still generous
Share the production experience
And use your own experience
Encourage patients with similar fate:
"Rather yourself with the loved manual craftsmanship
It will be the happiest thing in the world ""
Meet a miracle
Meet him
It is in the live broadcast room
That time
Auction in the live broadcast room
A boy from Shanghai constantly bidding
Finally at a high price of 1600 yuan
Take the hand to make Xiang Chenxi
"From the hand you do
As if you can read your extraordinary life
It makes people better believe that there is a miracle in life "
The boy said seriously
with a good impression
The two added WeChat
With the deepening of understanding
Two young people also came together
"She is true
Unpredictable
Facing with an optimistic attitude towards anything "
Boyfriend big fish (pseudonym) said
"I like it, she has all"
Life ushered in sweetness
The condition has also made new progress
last year
Diagnosed by domestic authoritative experts
Xiang Chenxi was re -diagnosed
"Immunohistosy
This rare disease
It is very similar to "Developing sexual malnutrition"
Although it is difficult to cure
For many years
Xiang Chenxi has missed the best treatment period
But in the video
She still smiled and shared hope with the fans:
"My illness may be cured!"
After more than a year of grinding
Xiang Chenxi decided to engage with her boyfriend in July this year
Then move to Shanghai
End the life of the two "long -distance love"
Next
Boyfriend will accompany Chen Xi
Go to Beijing to find experts for further diagnosis and treatment
She hopes
I can encounter the next miracle
Netizens have also sent blessings to Chen Xi:
Love life, born to the sun
It's really beautiful to work hard
Strong girl
come on! come on! come on!
Editor | Liang Liu
Nuclear Trial | Zhao Yajia
Laiyuan | Xinhuanet, Xinhua Daily Telecom
not
(Click on the picture to view the full text)
Recommended in the past:
Sorry! Superstar fall
Just today! The channel is officially opened
Why is the admission notice all delivered in China
[Youth Hubei] Submitting mailbox: [email protected]
Welcome to repost likes, reprinting must indicate the source
Come on for a strong girl!
- END -
The "Regulations on Land Management of Guangdong Province" will be implemented from August 1st this year
On the occasion of the 32nd National Land Day, on the afternoon of June 24, the Standing Committee of the Guangdong Provincial People's Congress held a press conference on the Regulations on Land Man...
The responsibility of the benchmark and the compacted on the table -Huanshan Township Organization held a joint meeting of cleaning units
On the afternoon of July 19th, the heads of road greening, garbage clearance, clea...