Even if it is terminally ill, never abandon it or give up -a story about a mother who is a child with a heavy land poverty -stricken child

For a long time in the past, Tian Yu has been reluctant to expose his identity.

Few people know that as soon as 5 months old, he confirmed a severe thaladitic anemia. Tim Yu will lose blood in less than twenty days. Every night, he has to get an injection on his left hand and inject drugs all night to maintain his life. Frequent treatment makes life fragmented, and the fragile body always waits for the opportunity to destroy the dignity of a boy. Tim Yu was unwilling to tell people that this tortured his twenty years of illness.

Picture: Tim Yu is a poverty -stricken patient.

But this day, Tim Yu stood out.

On September 7, 2022, in front of Zhonghua Plaza, Yuexiu District, Guangzhou, minors protection service public welfare picture exhibition and offline fundraising activities set off a wave. Tim Yu went to the stage, revealed his own patient identity, and used his own experience to raise funds for the poor public welfare institution founded by his mother. For two decades, he has experienced heavily despair and overwhelmed, and has also met more and more patients. His mother took him from self -help to helping others, accompanied and guided more people to regulate treatment, and found a balance between life and rehabilitation.

This disease requires more comprehensive social support, and charity is an indispensable force -a person is difficult to live in a difficult time, but a group of people always bring more hope.

Picture: Tim Yu's mother promoted the poverty alleviation service project to the citizens.

Self -service: Even if you let your son live for a day, you must persist in the difficulty

"Your child suffers from severe thalassemia -this disease is incurable, no medicine can be found, the treatment fee is not the bottom, blood transfers regularly, injections every day, and rely on drugs to maintain life." Tian Yu's mother Ma Guifeng still remembers that this is Tianda When Yu was born five months old, the doctor's diagnosis. This is a genetic disease caused by bead protein synthesis disorders. Although it can be screened step by step through routine testing, hemoglobin analysis, or 23 common macro -gene testing, there are still some leaks -and and a certain extent -and and and. As soon as the children of the poverty -stricken land are born, they can not only generate blood, but also cannot exhaust iron. Therefore, they need to be transfused regularly and hit the iron drainage needle every day.

From the day 22 years ago, everything Ma Guifeng did every day, leaving only the word "life -saving". "At that time, the local lack of clinical treatment and knowledge and knowledge, and a box of iron exhaust medicine ranging from 1,000 yuan to 2,000 yuan. I could only hold my son for medical treatment. Sometimes blood transfusion was less than a month. Bad limbs, fever, cough, diarrhea ... "

In the past, all kinds of vividness. It can be doctor for a long time. The more I have exposure to Ma Guifeng, the more I know what the consequences of the child are- "it will lead to a variety of complications, dysplasia, enlarged spleen, etc., which is generally difficult to live to adulthood." Ma Guifeng said that Ma Guifeng said. "At that time, I was uncomfortable and the economy couldn't support it, but I thought that even if my son could live in the world for one more day, I would persist again."

Figure: 5 -year -old Tianyu

In the future, the emerging treatment techniques of hematopoietic stem cell transplantation have become hope for the poverty of the land, and the news is becoming more and more wide. But what more families see are slim -the transplantation must be successful, and the matching is the key. Hundreds of thousands of yuan, such as rejection or infection during transplantation, the cost is even more than one million yuan, which may be empty. Do not abandon, do not give up, holding this idea, Ma Guifeng applied for a second child matching model, but did not expect that the matching type was unsuccessful, and the child's father finally left, leaving himself and making money alone, and exhausted his efforts to do his best. Feed two children.

Figure: injections have become part of life (data map)

At that time, Ma Guifeng and Tian Yu did not dare to say "poverty". "We think the disease of" Poor Poor "is torture every second for us. In the spiritual pain, I do n’t want to mention the poverty of the ground. I do n’t want to say that they continue to live with time and time race. I just want to live like a normal person, live for one day, and live with dignity. " Blood transfusion every month, iron discharge every day, and such treatment costs accumulate a little bit, as high as thousands of yuan per month, Ma Guifeng recited alone. And Tian Yu also worked hard. Before going to bed, the injection pump was injected on the back, and the needle was pulled to school in the early morning. Blood, the whole blood of about 3 to 5 people's blood transfusion is survived every day.

It was also in these twenty -two years that he and his mother saw more patients and moved towards different fate.

Help people: holding a group to warm, maybe more hope can be brought

In the process of treating the disease and saving life, Ma Guifeng met many patients with patients, because of various reasons to "avoid" diseases, bringing too many stories of irregular treatment, abandonment, and torture by illness. "Earlier in the early years, the local poverty was not known, and regular blood transfusion was a luxury. If you can't even do it, how can you talk about treatment?" In the long process of poverty alleviation, Ma Guifeng became more and more consciously conscious To get more opportunities for children to get life -saving, it is necessary to promote the development of poverty treatment in a region -this means that she must try to save more people.

"In 2010, there are difficulties in blood transfusion in many places." Ma Guifeng recalled that in order to solve the problem of blood transfusion, he took his 4 -year -old younger son, pulled his elder son, and ran around, looking for relevant agencies to coordinate and exchanges, and strive for poverty -stricken patients to solve the solution The problem of blood transfusion finally received the attention of relevant government departments and strong support and help. Ten years later, again for other reasons, the poor patients went to the hospital for blood transfusion and encountered difficulties. Ma Guifeng communicated and coordinated with relevant departments to promote the opening of green channels in local hospitals and timely blood transfusion of patients with poverty -stricken patients. Picture: For a while, Ma Guifeng was busy before blood transfusion

But blood transfusion and hospital treatment are only one of the difficulties.

People transplant hematopoietic stem cells as the only opportunity to get rid of nightmares. However, this opportunity alone is very "luxury". Ma Guifeng said: "Before transplantation, you must do a high -resolution matching, 1500 yuan per person. If a family of three matching models is close to 5,000 yuan, and the matching model is not necessarily successful, this is also an economic burden." Ma Guifeng Feng. " It failed on the road of matching, but did not stop, and ran around to publicize, and strived to reach a public welfare cooperative relationship with Huada Gene in 2011, which symbolically charged some expenses to provide [HLA] highly resolved for family poverty families in the ground. Dating service. By 2017, a permanent free heavy -duty poverty -stricken patient [HLA] high -resolution matching service.

The difficulties and setbacks faced by the poor families have not been suspended.

In 2014, Ma Guifeng established the Guangzhou Xinlian Poverty Service Center (formerly known as the "Guangzhou Liwan District Poverty Service Center"). Children are connected to public welfare diagnosis and treatment resources, and popularize the knowledge of poverty and standardized treatment. "There is still a certain degree of missed inspection in this disease. In reality, there are constant poverty -stricken children in the middle and heavy children. Most parents have experienced despair and weakness. No one knows what to do." Ma Guifeng told reporters, "I think we can we can Hold the group to warm up, give more people in the right direction together. "

Picture: With Ma Guifeng and others' efforts, many hospitals have also begun to provide a series of support

Change: More people need to participate and work together

According to incomplete statistics, there are currently about 15,000 domestic and heavy poverty -stricken patients in China, but in Guangdong as an example, there are very few corresponding public welfare support institutions. Parents' pain, children's doubts, and confusion in the future ... These are the topics of chatting of poor families. Behind the topic is the burden of depressing emotions and economy, as well as self -blame, inferiority, overwhelmed, every emotion is Like the turbulent wave, swallow the so -called hope.

In the past eight years, there are remote mountainous areas from 400 kilometers, and have not been regulated treatment for more than ten years, and have been sent to the ICU for various complications to find this Guangzhou institution and have obtained suggestions for standardized treatment. Now they are working in Dongguan; There are also people who found Ma Guifeng through the Internet search platform. In an unfamiliar and helpless call, they talked for nearly two hours and found a new matching treatment plan together. By 2020, due to the impact of the new crown pneumonia, offline visits were restricted. Ma Guifeng and others transferred their positions to online, and carried out online standardized treatment and nursing guidance services through WeChat and QQ groups.

"Many helpless parents consulted me, I feel the same, I am also an abandoned single mother, and my child is also poverty -stricken. I take two sons alone and live in a very difficult day every day. Living, we must face life with a smile, there is no way to retreat, and we can only live and lively and strong. "Ma Guifeng said," Every case is a life, the situation is different. At the same time Continuously increase. "While taking care of the two sons, Ma Guifeng must also take care of humanitarian assistance and rehabilitation care. For a moment," but the entire team is also three people, constantly burning himself, and there is no way to benefit more patients. "2015 In the year, because of severe overdraft, she raised her body for a while.

As a patient, Tian Yu knows how difficult it is to help a poor patient to return to society -not only for cure. "I because my body is inferior, including the scar on the fist, and the color of the urine appeared after the iron exhaust, every time I go to the hospital, the body does not seem to be better than others ... Fortunately, there are always moms encouraging around me." Tim Yu "The self -confidence I stood up today was established a little bit, including when I was in the sports entrance examination, I could choose to run for 10 kilometers, and finally ran a full score. In more, more poverty -stricken families have not given their children to encourage and psychological intervention in a timely manner, and even say, "Don't take high school, just go out to find a job. You can not".

At the level of public welfare institutions, Ma Guifeng faces the problem of insufficient manpower and unique service; and many poor families need guidance, and they also need courage and hope. This series of needs need to respond through social integration and targeted service support. And all the problems are converging, breaking the closed circle. Ma Guifeng said, "I didn't dare to talk about 'Earth Poverty" in the outside world, whether I was or him, we felt that it could not be said. But as the time of poverty alleviation became more and more, I have seen one family one after another who has experienced it. The difficulties, I realized that we must stand up and let more people know our story. "In 2022, she successfully won the public welfare innovation investment in the ninth Guangzhou Social Organization and took on the prosperous streets of Guangzhou in September. Tell the story of the passers -by to fight against poverty, so that the project can get more support, professionalism, and continuity. Ma Guifeng said that there is a clear goal this year. "We have to raise funds to drive public participation to provide standardized treatment guidance and training for families of 5,000 poverty -stricken patients, saving about 1,500 yuan/person; Family provides professional services such as psychological guidance and spiritual comfort ... We hope more people know, fight for more caring people, support the support of caring companies, and carry out more services. "And Tim Yu also made up for the spokesperson-" My mother has done a lot. She has always told me what she is doing. I also want to support her and support more patients who encounter difficulties. "

Text/Guangzhou Daily · Xinhua City Reporter: Su Zan Correspondent: Wei Tao Tu/Guangzhou Daily · Xinhua City Reporter: Mo Weipun Guangzhou Daily · Xinhua City Editor: Long Chengliu

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