Too inspiration!80%of the whole body is paralyzed, she pinch more than 200 clay characters with both hands

A long ancient style dress

Two playful braids ...

80%of her whole body paralysis

Need to wear breathing tube to breathe

But even so, she will still be on time every day

It appears in the live broadcast room to interact with fans

With both hands

Pinch more than 200 clay figures

She is the post -90s girl Xiang Chenxi

After the 90s, girls are suffering from rare diseases

After dropping out of school, I learned to open an online store to make money

Born in the morning dawn in Hubei in 1992, he came to Wuxi, Jiangsu in Wuxi, Jiangsu in his childhood. At the age of 7, she was diagnosed as "performing malnutrition."

Xiang Chenxi: I often wrestled inexplicably, and felt that the bones were suddenly softened, and they fell into a swollen face. My parents took me to see a doctor.

Doctors diagnose that with the age of age, the muscles of the morning dawn will gradually shrink, and the ability to move slowly.

With the help of students, Chen Xi finished junior high school and entered high school to study. But for Chen Xi, she continued to study a little bit, so she proposed to her family to drop out of school.

After going to school in 2011, Chen Xi was unwilling to spend time in this way, so she tried her best to work at home to make money at home. Write novels, as customer service, and opened online stores. She wanted to reduce the burden on the family.

Xiang Chenxi: I dare not think that a person stays at home every day, and then I learn step by step.

80%paralysis of the whole body

Make more than 200 clay figures with both hands

Chenxi needs to wear 15 to 18 hours of ventilator every day. The waist, legs, arms and other parts cannot move, and the neck and waist are also greatly affected. I have to adjust my mother for a long time every day, so that she can sit comfortably on the chair.

In order to take care of the sick daughter, Chen Xi's mother resigned and returned home four years ago, almost inseparable from her. In 2016, Chen Xi was inspired by a hearing -impaired girl. While doing the customer service of the online store, she began to try to do live broadcast.

Xiang Chenxi: I like this kind of atmosphere of listening to your speaking seriously, so I always persist.

The cheerful personality, humorous words, and inspirational life experience have allowed Chen Xi to sucked countless fans on the live broadcast platform. In order to make the live broadcast content more abundant, she tried to learn singing, Okari, Yuxili, and various handmade clay.

From nothing to knowing all kinds of clay skills, Chen Xi learned for nearly a year. In the case of 80%of the whole body, Chenxi relied on only fingers that could move flexible and moved, and made more than 200 clay figures on the designed table boards.

Xiang Chenxi: It is not the size, but the details. Maybe you make a shoelace, which is more complicated than making a foot and a pair of shoes.

Today, the characters produced by Chenxi are getting more and more realistic, but compared to a sound person, it is still very time -consuming. Chen Xi also shared videos of clay and daily life on multiple video platforms, and in 2019, he founded the "Morning Clane Academy" professor of clay skills.

Xiang Chenxi: I think I can also contribute to a rare disease group.

"Life is beautiful

As long as you are alive, there is infinite possibilities "

She had deteriorated several times and passed by death. She even asked the doctor to donate the remains of the body ... Fortunately, the strong girl came over and still had hope for life. "Life is beautiful, as long as you live, there is infinite possibilities."

At present, the online college founded by Chenxi has also developed from the beginning of the single fighting into a team operation. There are currently more than 400 students, of which 20 and 30 are disabled, and Chen Xi also removed tuition for them.

After being diagnosed with domestic authoritative experts, she was re -diagnosed as "immune -mediated necrotic muscleitis". This rare disease is very similar to "performing sexual malnutrition". Although it is difficult to cure, it is no longer a disease. I hope that Chen Xi will stand up one day in the future to usher in the next miracle.

Source: CCTV News WeChat public account

Edit: Pan Wenchang

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