The country's first "life -saving medicine" prescription!3 hospitals in Guangdong are available

Author:Guangdong Sanitary Online Time:2022.09.24

With the efforts of the National Health and Health Commission and the State Drug Administration, on September 22, the original research medicine that was temporarily imported as a clinical need of drugs was also once known as the "life -saving medicine". The first prescription.

▲ German version of chopphazhazha

Cobra is a drug for children with rare cure for children with epilepsy. It has a very important position in auxiliary therapy. It can be said to be a "life -saving medicine" that has less side effects on such diseases. However, because chipuba occupies the second type of psychotropic drugs in my country and is addictive, it has not been approved in China before.

Ms. Mao's son is the first child to legalize the original medicine chinenzhazhazha. When the child was two years old, he suffered from infant spasm. In the patient's group, he knew the news that clotal was listed in the country. On September 22, she made a special trip from Hebei to the Department of neurology of Beijing Union Hospital with Hebei.

It has been nearly 5 years since the child has taken clubbockeys. Before that, friends have purchased from abroad, and often faced the risk of drugs. And if such diseases cannot be taken for a long time, it is easy to repeat and even bring complications.

"Originally, I have been purchasing online, and I have been looking for someone from Germany to buy, but I have been afraid of buying fake medicines, and I am very worried. It is too convenient now because I don’t have to worry about buying fake medicines. It's a regular way, and don't worry about the drug break. "Ms. Mao said.

Ms. Mao's "purchasing from abroad" also happened to many children's families, and she was even twists and turns. We might as well sort out the development timeline of the incident.

◎ At the end of November 2021, Min Wen, a child in Guangzhou, wrote a letter of help "How to let our children survive?" 》, Parents with more than 1,000 children jointly ask for help from the society. The letter revealed that it is effective for children with effective children with epilepsy. Many countries in Europe and the United States have been approved to be listed and used for the treatment of epilepsy. Essence

◎ In the same year, Li Fang, a mother of a child of Henan epilepsy, helped a buyer "Iron Horse Glacier" collected the clotal parcel purchased overseas. "Iron Horse Glacier" and Li Fang were considered "crimes of smuggling, transportation, and drug trafficking" by prosecutors. Although Li Fanghou did not prosecute due to the minor, the patient group was collectively caught in a crisis of drug break. (Earlier reported "Is the drug trafficking for the purchase of life -saving pills for his son? How to break the dilemma of medication for rare diseases?

In order to meet the patient's demand for a small amount of specific clinical urgently needed drugs that have been listed abroad and have no supply in China, in June of this year, the State Health and Health Bureau and the State Drug Administration jointly formulated and released the "clinical urgent need for temporary imports of drugs for drugs. "And" Cobra Temporary Import Work Plan ".

The "Plan" states that in the 50 tertiary hospitals leading the country in the Beijing Union Hospital, imports of chipuba will be implemented one after another. Children and family members can buy chorica through qualified doctors. These include three Guangdong Hospital of Shenzhen Children's Hospital, Guangzhou Women's Children's Medical Center, and First Affiliated Hospital of Sun Yat -sen University.