The nation's first "life -saving pill" chorus occupation prescription was opened at Beijing Union Hospital

On September 22, Lu Qiang, deputy chief physician of the Department of Neurology, Beijing Union Hospital, carefully took a consultation with a patient sitting in a wheelchair and suffering from refractory epilepsy, prescribed clotal occupation, and explained to the patient's family in detail the medication. Plan and precautions. This is the first prescription for cure epilepsy drugs. The movement of Beijing Union Hospital enables patients with refractory epilepsy to be reasonable and safe and safe under the guidance of a doctor to meet the needs of medication while reducing the risk of adverse drug reactions. This is another major event for rare medical medication.

▲ Dr. Lu Qiang explained the precautions for medication with the patient's family

The oxia is effective for some rare or refractory epilepsy. At the same time, as a new type of benzodiamine, this drug is addictive and is included in the second type of psychotropic drugs. It is strictly controlled by my country. In order to solve the needs of patients' medication, the government leads all parties to actively apply to achieve sexuality as soon as possible to meet the treatment needs of patients.

Directed by Zhang Shuyang, Dean of Beijing Union Hospital and Du Bin, deputy dean, and the rare multidisciplinary collaborative group of Beijing Union Hospital and the China Rare Disease Alliance in China, and invited experts in the country and pediatrics in the country to demonstrate chinenia. Start the temporary import process of drugs, closely cooperate with the production unit and commissioned import units, and complete a series of declaration materials for chlorum occupation, price and quantity confirmation, order contract signing, etc. according to my country's one -time import related application process, and start to start the chlorine chlorine Batza's one -time import application and approved.

▲ Patient's family received clotal occupation in the Union Pharmacy window

At the end of June 2022, the National Health and Health Commission and the State Drug Administration jointly released the "Caber Occupation Work Plan". Patients and family members of epilepsy can be announced in the 50 third -level hospitals in the plan. Use the chorus to occupy the prescription. Zhang Bo, director of the Department of Pharmacy Department of Peking Union Hospital: "Peking Union Hospital completed the one -time import of Mittan in rare disease medicine in 2019, and opened a precedent for clinical urgent need of rare diseases in my country. Unlike Mittan, it is Mitartan. This time, the temporary import of desert is under the unified deployment of the government. It can be used in 50 designated hospitals across the country. A new innovative mechanism of Chinese characteristics can be established to provide other rare diseased drugs provided the availability and sexuality of other rare diseases. Solving the path. "

▲ Chleba Drugs Enter the Kuhe Pharmacy

In order to ensure the rational medication of clotal occupation, Dean Zhang Shuyang led, the rare multidisciplinary collaborative group of Beijing Union Hospital and the China Rare Disease Alliance organized the National Experts in China to write the "Consensus Experts of Copycrities for Treatment (2022)". Increase the effectiveness and safety of clinical applications.

From "no medicine can medicine" to "medicine can be available", to "use medicine", rare medical drug protection achieves leapfrog development. With the support of the State Health and Health Commission, the State Drug Administration and other relevant ministries and commissions, the Beijing Union Hospital integrates multiple forces to actively explore the one -time import of rare diseases, the use of clinical trial drugs for expanding sympathy, and the "green channel" urgently needed "green channel". Models, continuously exploring rare diseases can be available, strengthening pharmaceutical management, and contributing to the establishment of a rare medical supply guarantee system.

(Guangming Daily All -Media Reporter Cui Xingyi Correspondent Wang Lu Chen Mingyan Xu Tingting)

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