"It was the age that should be enjoyed, why did you get this disease ..."

In the comment area of ​​the medical micro visual website, there is such a special message:

At the age of 51, it may be close to retirement, and the children have a small success, and finally they can start to enjoy the age of blessing. And at this age, 3-4 people in each 100,000 people in my country will be blocked in front of the door of happiness.

Grave -frozen disease can make people lose their freedom

"Grave -frozen disease" is Medically called muscle atrophy side sclerosis. It is the most common one of all motor neuronal diseases, accounting for about 80%.

This is a disease that can "freeze" the whole body muscles and loses the ability to move.

At the beginning, it was often onset of the hand. It may be just a small piece of muscle on the side of the hand shrinking. There was a slight hand weakness, the movement was not flexible, and it was difficult to do it. Symptoms such as muscle beating.

Then it will gradually affect the other hand, and then develop to the arms and legs. It will gradually affect the symptoms of controlling swallowing and chewing muscles, and the symptoms of unclear words, drinking water, and swallowing difficulties.

If the condition continues to worsen, in the end, all other exercise functions may be lost except the eyeball can be moved and can only bed. It may even affect the respiratory muscles, which causes unable to breathe autonomously. The ventilator assistance is required to maintain life.

But galaxy does not affect sensory function

Although galaxy disease can damage the exercise function, it is limited to those muscles that can be dominated by will. As for myocardial muscles, gastrointestinal smooth muscle, and bladder sphincter muscles, which have autonomous rhythm muscles, are not affected. Therefore, patients with galaxy disease will basically not have extreme conditions such as heart stopping.

In addition, due to the human body's movement and sensory functions, different nerves are dominated, and gradually freezing disease has no significant effect on human sensation.

Even if the patient can't move, but if someone touchs, beat them, and even use cotton to scratch the skin, they can feel it.

In terms of cognitive functions, most patients are also normal, but some people may also have the mental and psychological changes after illness, such as low mood and anxiety, which will affect the cognitive function.

In addition, a small number of people (10%-30%) may indeed be accompanied by cognitive function loss. If the moutal dementia is combined, it will also significantly affect the cognitive function. abnormal.

Although the survival period of frozen symptoms is short

But there is still hope

The exact cause and pathogenesis of galaxy disease have not yet been clear, but the medical community is currently recognized that it may be related to some environmental factors, such as organic phosphorus pesticide poisoning, long -term contact with heavy metals, herbicides, etc. Under the common action of genes and environment.

In our country, there are more men in patients with frozen disease than women. The age of onset is 40-60 years old, with an average age of onset of about 52 years. After illness, the average life expectancy may be only 3 and a half years.

However, in recent years, with the development of therapeutic drugs, nutrition and nursing support, and the use of non -invasive ventilator, the survival of patients has been significantly extended.

Even some patients can survive for more than 20 years after illness. Director Cui Liying mentioned that some patients can still use the eye movement instrument.

Therefore, patients are also encouraged to actively receive treatment, and they hope that family members can accompany and support more to help patients try to extend their survival.

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Reference materials:

Medical Micro Studio Official Website -Cui Liying Chief Physician "Muscle atrophy Side Cable Sclerosis (Gradient, Sports Neuron disease)"

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