Only 1200 grams of birth, unable to breathe autonomously!After two years, children with severe bronchial lung development were rescued in Shanghai, and Shanghai doctors created a miracle of life.

With two small braids, watching Yaya (a pseudonym) who runs wildly in the ward, it is difficult to associate her when she was first entered the hospital. I spent two birthdays at the National Children's Medical Center and Fudan University Affiliated Pediatric Hospital. This morning, Yaya, who suffered from extremely severe bronchial lung development, breathed a stable breathing, and finally discharged smoothly.

Live the difficult treatment of long -term "tracheal cutting and long -term mechanical ventilation", and successfully passed the difficulty of "removing tracheal intubation and closing the tracheal fistula". Children with severe bronchial lung development.

Recalling nearly 1,000 days and nights after the child was born, my mother had a sense of intersection. "Thanks to Shanghai doctor, you have created a miracle for your children and our family!"

The only hope for the ventilator to survive

When discharged from the hospital, the Fudan Pediatrics sent a thick album into the hands of Yaya's parents. The photos set the memory and turned the album in their hands. The blurred details gradually became clear, and the picture became more colorful.

Time was revealed to two years ago. On February 8, 2020, Yaya, who was only 27 weeks old, was born, with a weight of only 1200 grams, which belongs to a very low weight premature babies. Her twin brother passed the stage of premature treatment, but Yaya had severe lung disease, and the ventilator became the only hope for her survival.

"Wait, wait for the children's trachea to grow." The family comforted each other, and they could move to three hospitals and lasted eight months before and after. Yaya still couldn't get out of the tracheal intubation and breathing support. Looking at the child who was lying on the bed, the dying child, Yaya's parents made a decision: go to Shanghai and make the last blog.

On September 27, 2020, with the support of the ventilator, after more than 10 hours of trek for more than 10 hours, Yaya arrived in Shanghai and transferred to Fudan Pediatric NICU (neonatal intensive care unit) for treatment. At that time, the August -old baby weighed only 3,000 grams, like a newborn baby.

After admission, the freshmen formed a group of special diagnosis and treatment of Yaya for 24 hours of special diagnosis and treatment of Yaya for the first time, a group of neonatal doctors, chronic pulmonary disease nurse and respiratory therapist. PICU, respiratory, digestive, nutrition, and rehabilitation department for multi -disciplinary comprehensive diagnosis and treatment, and conduct comprehensive condition evaluations for the children's systems.

In the end, Yaya was diagnosed with extremely severe bronchial lung development. "Children have severe lung substantial lesions, and normal lung tissues are almost not seen on CT." Professor Cao Yun, director of Fudan Pediatrics, said that part of Yaya lungs are severely excessively inflated, like the balloon that is about to blow, and the other part is completely closed completely. , Can't inflatable normally.

To make matters worse, Yaya has severe trachea and bronchial softening: the trachea and bronchies are severely collapsed. Under normal circumstances, the trachea and bronchies should be like a hollow circular pipe, while Yaya has no breathing pressure support, and the front wall of the trachea, bronchial tube and the rear wall of the trachea cannot be opened.

"Extremely severe bronchial lung development is one of the most difficult to treat severe diseases in the field of neonatal medicine. The treatment of bronchial cutting and long -term home mechanical ventilation is the best treatment plan at the moment." At present, there are no successful survival cases after the bronchial cut.

The best treatment plan is full of challenges and risks

A choice full of challenges and risks was placed in front of Yaya's parents, but they did not hesitate. "Since it comes, we choose to believe in the doctor. We let go and hope that we can live in a desperate." Mom said firmly.

"This is a long -lasting battle. We must be prepared to be sufficient." Cao Yun told reporters that under the careful treatment of the Fudan Pediatric Multi -Disciplinary Correspondence Team, Yaya's nutritional state and infection state have gradually improved.

The right time finally came -on November 4, 2020, Fudan pediatric ear, nasal, throat and neck surgery performed bronchial cutting fistula for Yaya, which provided the possibility for her long -term and sufficient breathing support. At the same time, she brought her with it. The ventilator goes home and continues to receive breathing support treatment.

"By establishing a safe and stable airway for Yaya, it has won valuable time for the restoration and growth of her own respiratory organs, which is convenient for rehabilitation training. She also shortens the child's hospitalization time as much as possible, so that she may return to her family life. "Cao Yun said.

Considering that after being discharged, Yaya will spend at least one year of mechanical ventilation treatment at home, and the proper care of the family is extremely important. To this end, the freshman team invited her parents to the bed beside the intensive care room to conduct high -intensity family care, emergency treatment, rehabilitation exercise and other training. All skills and assessment.

Finally, Yaya was discharged from the hospital with a ventilator! In order to take care of the child, Yaya's parents rented a house next to the hospital. The neonatal department also established a supporting group after discharge of doctors, special sick nurses and respiratory therapists. The newborn head physician Jiang Siyuan was led by Jiang Siyuan to provide parents with 24 -hour technical support.

Not only that, the support team often uses lunch breaks to follow up to follow up for Yaya, check and replace ventilator pipelines, wound care, drug adjustment, and nutritional guidance.

Waiting for the right time to break through the last level

Under the careful care of the medical team and family, Xiaoya's small board gradually became strong, and ushered in one after another "first" after another: June 20, 2021, Yaya laughed at the first time; 2021 In September of the year, Yaya evacuated the ventilator for the first time ... Just when everyone thought that the situation was better, the danger appeared. In October 2021, Yaya had a respiratory tract infection in his hometown in Jiangxi, and the situation was very critical, but there was no local treatment experience. Dad drove her overnight to Shanghai. When I arrived at the hospital at 4 am the next day, the follow -up team led by Jiang Siyuan had arranged for the consultation and hospitalization, and the Yaya, who was rescued in a timely manner, was discharged smoothly after a week.

Since then, Yaya has occurred several respiratory tract infections one after another. Fortunately, he spent no danger. "Yaya's bronchial bronchial softening is not inherent. We have been waiting for the right time to close the bronchial fistula. This will be the last level of her through the extremely severe bronchial lung developmental dysplasia support treatment. It is also an extremely important level. "Cao Yun said.

In August of this year, Yaya, who broke through several times, returned to Fudan Pediatrics again. When Chen Chao, the main sword doctor of the otolaryngus and throat head and neck surgery, exposed the bronchial mirror into Yaya's trachea, the operating room made a excitement. The severe tracheal softening has been fully recovered. Qi -cutting fistula can be closed, and Yaya can finally breathe freely with her own airway!

"Yaya's successful treatment is the most difficult for newborn medical fields. Children who have no chance to survive have provided a living hope." Cao Yun was very excited and completed the "impossible task that could not be completed in the newborn department and Yaya's parents. "".

"Thank you! Thank you for your strength, thank you for your persistence, thank you for letting us see hope, let's open your wonderful life, come on!" On the occasion of the hospital, the medical "parents" and Ya Ya Farewell, the child's eyes were ignorant, and the corner of her mouth was hanging. She will take these sincere blessings to embark on the new journey of life.

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Author: Li Chenzhen

Edit: Li Chenzhen

Editor in charge: Jiang Peng

Photo Source: Courtyard Conferring

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