Patients with no borders | 3000 days for a cancer patient and he treated

"Patient No Borders" Shi Yonggang

Ideal hospital

Wen | Shi Yonggang

On May 10, 2022, I reviewed it at MD Anderson Cancer Hospital in the United States. CT test results: Some of the previous known nodules in the right lungs have significantly improved and faded; radioactive pneumonia is further reduced. The bad news is the side effects brought by the long treatment: the pathological compression fracture of the L4 vertebral body is intensified. In the later period, surgical treatment may be required. But this is only a side effect of treatment, which has nothing to do with tumor. My attending doctor at MD Anderson's diagnosis of this is: Stable. He decided to extend my follow -up time again and make a enhanced CT every six months.

This is an important news that I have been looking forward to for a long time, and it has been three years since I interrupted treatment. Three years are a huge award for tumor patients. I am entering a very important and critical match period. In traditional sense, if the treatment is over five years and has not recurred, medical clinical cure has been achieved.

I have two years before this goal. After arriving at this time, I still need to follow the clinic for a long year, and there is no timetable. The life of cancer patients is a difficult marathon, because the end point looks far away.

Since I found that I have suffered from rare tumor adrenal cortex cancer in the medical examination in September 2012, I have been treated with the MD Anderson Cancer Center in the United States for nearly ten years at the domestic Union Hospital. In the past ten years, I spent eight years in uninterrupted treatment.

In ten years, I have made more than 60 CT, PET-CT, and X-rays in these two hospitals. What is the amount of radiation equivalent? According to USPSTFs specializing in cancer screening in the United States, a regular CT radiation is equivalent to taking 75 conventional X -ray films, 250 long -distance aircraft, or radiation of two years of natural background. The amount of CT radiation used for conventional diagnosis is about 7 msv (Nissif, radiation dose unit). The dose I cumulative is at least 500msv. This radiation dose is equivalent to a dose of more than 15,000 planes around the world or taking 4,500 X -rays. And this is just the dose of ordinary CTs. Most of my inspections do to enhance CT and PET-CT. This dose is more than double the ordinary CT.

But this seemingly scary dose, compared to the large -dose radiotherapy with a total of nearly 300GY in the six cycles I made, almost not mentioned.

In ten years, I had two operations. One is a nodule of nearly two kilograms at the Xiehe Hospital; one is the vertebral bone cement surgery performed at the MD Anderson Cancer Center. One is a big surgery, the other is minimally invasive, but all are generally hemp. I also did two cycles of large -dose chemotherapy and three cycles of clinical trials, colonoscopy, one laryngoscope, three emergency three times, and hospitalization four times.

I have gone through two top hospitals in China and the United States, and at least dozens of doctors have participated in my treatment. It is hard, look back, but just a bunch of data.

The body is slowly repaired and the time is reappearing.

On May 10, 2022, after a review at the MD Anderson Cancer Center, he took a group photo with my attending doctor Professor Hubble. The MD Anderson Cancer Center is the first doctor's responsibility system. Since April 2013, he has been responsible for my treatment in the hospital, such as referral (chemotherapy, surgery, radiotherapy), consultation, recommendation of clinical trials, etc.

This is often the case in the world. At that time, it was just a memories after a few years.

From the beginning of illness, a friend asked me to record the treatment at the MD Anderson Cancer Center. They think this has important value for other patients or myself.

But in the first few years, I have been busy with various treatments, and I can't think about these seemingly important experiences in the pain. At that time, I was seriously ill, exhausted, and full of despair. I couldn't believe that I could be cured, and I couldn't believe that my fate was at the last moment, and I salvaged me again from sinking. I do n’t know if I can live tomorrow, so I have no enthusiasm for recording my medical records and people and things around me.

I actually resist writing this book.

Four years ago, when I wrote this book, I was very tangled and sad, and I didn't dare to face the condition of my own condition written in the doctor's electronic medical records and the thrilling experience of these eight years. In fact, the fundamental reason is that I will become the protagonist of this book, and this is not what I want, nor I want to express, and even I don't want people to know what happened in ten years.

It was once my most hidden secret.

To some extent, cancer is a judgment of a person, and it naturally keeps you away from the normal world. Cancer seems to be an identity, a situation, and the beginning of your inferiority.

I can't stand sympathy, and I can't stand people's care.

I started to become weak and even anxious. The disease will not only change your body, but also change your thoughts.

For a long time, I lived in a community near Houston's hospital, and worked with a group of cancer patients. For a while, I disappeared, or it was hidden. My mother did not know the news of my illness before her death, and she had been living in the imagination of her son's "head". My friends did not dare to inquire in the rumors. I only saw my brilliant smile on social media, and saw everything I wanted to tell them very good illusion ... They didn’t know, these smiley faces were I was lying on the chemotherapy bed, covering each word with weak hands. I am afraid that they know that I am a patient and a cancer patient.

Cancer, "It was once private and the disease that needs to be whispered." It is still a frustrated wall. Santag wrote in the Metaphor of Diseases that cancer is not only a disease in the biological sense, but also a huge, social and political disease, a disease full of punishment.

Cancer patients are a kind of identity and a "original crime".

When the disease strikes, not only will they bear the trauma from the disease, but also accept the discrimination of human nature. It is forgotten by many people or is alienated by friends ...

Cancer patients often surpass people's imagination because of this.

Although many times, I don't care if others care about me.

A friend of mine knows that I tried to record this life and warned me: Once this book is published, you will be given a symbol in the public or readers: cancer patients, whether you cure. And you will welcome sympathy or false praise. Perhaps it is a "isolation", yes, a "spiritual isolation" that is more serious than the isolation during the epidemic.

I repeated in this hesitation. After writing and stopping, after writing tens of thousands of words, it was finally put on hold.

In October 2018, I took a photo in the hospital with Aung Nain, Professor MD, and Dr. Gong Jing after 35 (2 years) of immunotheistic clinical trials. I have stayed in the clinical trial team of Professor Aung for more than 4 years.

It is to promote me to continue writing this book: two things:

In 2019, after two years of immunotherapy of Pabaoli Ming Ming (Kedica Kimine Kimine), most of the nodules on my body were eliminated. But after four months of treatment, my CT results showed that the right lung nodule had increased to 1.7cm. This means that I have a new "widow transfer". After finishing SBRT radiotherapy, I returned to Beijing for three doses of K -drug enhanced treatment. Fortunately, what I met in this private hospital was a very responsible retirement doctor of the Three -Meng Hospital. Because PD-1 has not been listed in China for a long time, I am the only tumor patient they have encountered for two years. They needed me to provide a medical record at the MD Anderson Cancer Center. After careful research, I decided to give me three doses of K medicine when I signed the responsibility. But they made a request to copy one of the English medical records treated at least twenty pages of MD Anderson Cancer Center for them. Because this is a specimen that treats adrenal cortex cancer, it has experienced various treatment methods such as surgery, Mittan drug treatment, chemotherapy, immunotherapy, and radiotherapy. They were very interested in my treatment experience. After listening to the course of the treatment of my treatment at the MD Anderson Cancer Center, they said that this medical record has a reference for treating similar patients in China.

This is the first time I have discovered that my treatment process may have reference value for others.

One month later, I received a call. The other party said that he was a patient in Guangxi. He was only eighteen years old. He also suffered from adrenal cortex cancer. He ran through Shanghai, Beijing and other hospitals that were almost likely to treat this disease, but helplessly. His doctor gave me the phone. He wanted to consult whether he could go to the United States for treatment. I saw his medical records. The transfer of the liver has been about 5cm. The lung nodule is above 3cm. breathe. He asked me if there was any way, I couldn't, only experience. I made two suggestions. One is that if I want to come to the United States for treatment, I can help him make an appointment for a doctor. At the same time, I wrote a detailed list for the methods of treatment and the treatment costs required to go to the United States. The second is that if you can't go to the United States, can you ask a doctor to consult, local radiotherapy or surgery, and reduce the tumor load first.

But unfortunately, he lost contact in just two weeks. The family called him, and his family said he had died.

This is a huge blow to me. Seeing that a patient died, but it was powerless.

If you find a specialist who can treat this disease one day, find a right method earlier, maybe he is still alive. Perhaps he already has a girlfriend and a good life.

Almost all patients are crazy survivors. Living for them is a special mission and a subconscious attack. Live and alive, they are all real pursuers and detectors of life.

But once the cancer patient is diagnosed, it is actually caught in the mud. Because there are no ready -made guides, no ready -made doctors, tell you how to act, how to treat, and find a hospital, doctor and drug that may cure your tumor.

For the first time, I regret that I did not write down my experience to him. Perhaps he will find the way he rescue when he sees this book. Sickness is a process of studying and self -help for everyone. Some people fail, while others have found a way from the experience of others. Professor Zhang Yuzheng, director of the Department of Radi Cancer Center of MD Andandesen Cancer Center, took a group photo with a 97 -year -old American female patient (has obtained the consent of the patient). The patient's early lung cancer was cured after treatment after SABR radiotherapy surgery.

In the two miles of Houston MD Anderson Cancer Center, since 2011, thousands of cancer patients lived here. According to incomplete statistics, there have been more than 10,000 Chinese patients who have treated various diseases in the United States in the past ten years. This community is known as the "Chinese Cancer Village" of Houston. The boss, real estate businessmen, and famous political leaders who live here are also the working class of the working class of selling houses to borrow money for children, as well as major domestic hospitals. Doctors and visiting scholars who go out.

Cancer patients are piled up here because there are a lot of information here. Everyone has a different treatment plan, which can find patients with the same condition. Everyone can remind each other and provide each other with various help. This is almost the circulation platform of various treatment plans of the MD Anderson Cancer Center. More importantly, everyone is a patient, the same disease, and the disease makes everyone equal.

However, cancer treatment is also a competition for financial resources. The medicine is more expensive than gold, and the money directly affects the probability of surviving. The MD Anderson Cancer Center is almost the most expensive hospital in the United States. One requires $ 10,000 to enhance CT, and it takes more than 1,000 dollars to draw blood. This is not just a gathering place for the rich, but also ordinary people who sell houses and borrow money to survive. If you have financial resources, you may use the latest tumor drugs, or you may also participate in the latest clinical trials. Almost every patient has a tangled process that costs more than 100,000 US dollars to purchase a chemotherapy drug that can extend a three -month life. Some patients spent millions of dollars, but they were still buried in a foreign country. A domestic documentary in China took a female patient in Shanghai and came to the MD Anderson Cancer Center to treat cancer. In the end, she was helpless to go home because she could not bear the cost of the cost.

The money was spent, and people were gone. This dilemma was almost normal in the treatment of cancer. It is also the norm in this "Chinese Cancer Patient Village".

Here, some patients have not been able to save their lives; some patients have only survived for several years. However, there are quite a few patients with serious illnesses who have been born there, and have changed their destiny since then.

For a while, I became the longest treatment patient in this community. In the past ten years, I have been living here and almost met all the patients who have come here for treatment.

Many new cancer patients have to consult me ​​on how to treat me in the MD Anderson Cancer Center, how to make an appointment for doctors, how to participate in clinical trials. Domestic friends often call me for various questions to the United States. Some of them are for their own condition and some for their family.

What is the difference between MD Anderson Cancer Center for tumors? How to find the best one for your doctor in the best hospital in China and the United States? How to go to the United States for treatment?

These are the long detours that I have walked to the middle of the road instead of the end. But these, for those who are just sick, are blocked.

As a patient, the biggest problem is that when choosing a hospital and a doctor, it is difficult for ordinary people to make the right choice. There is a high professional threshold for diseases and treatment. Good hospitals are always scarce resources. How to find scarce resources to treat timely treatment is a problem.

Perhaps I should make a record for myself, write this book to the United States to treat cancer, and my 3,000 -day experience in treating cancer at the MD Anderson Cancer Center, providing a copy of domestic cancer patients, patients' family members, doctors, and doctors. Guidelines for treatment, or reference.

This may be my original intention of writing this book.

Many people's cancer memoirs often become personal history of personal victory or tragedy. In this book, there is my own treatment process, the real story of the Chinese patient group who goes to the United States, and the life records of these people to survive between the two countries. Essence

In addition, the ideal hospital and the ideal doctor are the themes I want to express and find.

MD Anderson Cancer Center's Top Plant

What is an ideal hospital?

When I was sick, I came to the hospital. The first person I saw was the doctor responsible for the section. He is my guidance, responsible for preliminary inspection and solving my basic problems; help to confirm what disease is, and then tell me which hospitals in China are the best choice for treating my disease; give more than two or more. The list of attending doctors and told me the different diagnosis and treatment styles and advantages and disadvantages of the two attending doctors, and then I chose it.

After selecting a doctor, he would make an appointment to this doctor again.

There is a threshold for seeing a doctor. The name of the disease is easily troubled by a person who is puzzled. In other words, my ideal hospital is a "fool -style" hospital. After the patient comes to the hospital, as long as he will make an appointment to the appropriate doctor, as long as he knows his condition and requirements, he can make an appointment to the appropriate doctor, and then start entering to enter the enters. Next treatment. MD Anderson Cancer Center's doctor clinic

My ideal hospital is like a hotel that makes people feel at ease, rather than a swarms. It is a place that allows both doctors and patients to feel at ease, and everyone can be fully respected. The hospital should have temperature, and the architecture and decoration design allows patients to live like a home. No one here holds a bag of heavy CT films, all doctor's order, all diagnosis and prescriptions have an electronic medical record. This electronic medical record can be opened in any other hospital, and the results of the CT scan also recognize and interconnected.

My ideal hospital has free high -speed wireless networks, bright and neat halls, free coffee, comfortable sofas everywhere, and free computers and televisions. When you see a doctor, you will get at least fifteen minutes. The clinic is private. There is an independent clinic. The only time you talk closely with your doctor in the clinic, without other patients standing in the clinic, watching you take off your clothes, or watch you check your body. Then the family can participate in the company.

In this ideal hospital, if you have medical emergency needs, whether you have financial ability to pay medical expenses, whether you have medical insurance or not, you have the right to receive the necessary diagnosis and temporary treatment here.

In November 2018, the author took a 35 -cycle (2 years) after immunotherapy at the MD Anderson Cancer Center

After talking about the ideal hospital, I also want to talk about the ideal doctor.

This doctor will respect your career, tells you hope, and when you take the first consultation, you are your life -long doctor, unless you are not satisfied with him. He will follow up with all your treatment, and all the treatment will be initiated by him. He will send you to other doctors. After other doctors do the treatment, you will return to his clinic. If the disease progresses, the first doctor will initiate a multi -disciplinary consultation discussion, and continue treatment after determining the new treatment plan. When you exhaust all the treatment plans and use all the drugs in the guide, he will recommend you to the clinical trial group and use the latest medicine to participate in clinical trials.

This doctor will think for the patient, will provide the opportunity to use free medicines, and try to save you money as much as possible so that the poor can see the disease and enable the rich to enjoy the doctor. This doctor will argue for your treatment plan and even overthrow another doctor's plan or treatment. Such a doctor, I have met at the MD Anderson Cancer Center, and I also encountered it at Xiehe Hospital.

What kind of doctor is an ideal good doctor? The Meio Clinic, the first comprehensive hospital in the United States, has conducted a large -scale survey, which gives seven key features to identify a good doctor:

1. Confidence: "The doctor's confidence gave me confidence."

Second, understand the meaning: "Doctors try to understand my physical and emotional feelings and experiences, and convey this understanding to me."

Third, humanity: "Doctors have love, compassion, and amiable."

Fourth, personal: "The doctor's interest in me is not just a patient, interacts with me, and remember me as an individual."

Fifth, straightforward: "The doctor told me in a simple language and a straightforward way, what I need to know."

6. Respect: "The doctor treats me seriously and cooperates with me."

Seven, thorough: "doctors are serious, persistent, and responsible."

Surprisingly, these features cover doctors' behavior, not only technical knowledge. What is the point of an unqualified doctor, and the feedback obtained is these six points: timid, indifferent, misleading, cold, rude, panic.

The MD Anderson Cancer Center is the number one hospital in the United States for cancer. Xiehe Hospital is the number one hospital in China. I have experienced two best hospitals in different countries. I can feel different advantages.

A patient who pushed a chemotherapy vehicle during chemotherapy. Patients at the MD Anderson Cancer Center are in principle of chemotherapy and surgery. Chemotherapy does not need to be hospitalized. After chemotherapy is completed, you can drive home.

MD Anderson Cancer Center will see the time according to the differences between each patient, until the problem is solved. The longest time for me to see a consultation is an hour. It was when my condition turned a turning point, and the doctor patiently talked with me patiently. When I was undergoing back surgery, my neurosurgeon and I had a plan for surgery and exchanged twice. These twice were more than half an hour each time. I understood all the surgical steps. The surgical guidelines are clear, they do it clearly, I can rest assured. On the day of the operation, there was only my bone cement surgery, and the doctor was off work after finishing.

Their doctors will call me in the future. I have a telephone and email in my doctor's office. The fastest response to me is the email, and the phone is often difficult to get through, but the email is often issued. After two minutes, the reply received a reply.

MD Anderson Cancer Center's inpatient ward

My ideal hospital is a combination of Chinese and Western.Hotel -style hospitals, subdivided professional doctors, appointments, and not expensive fees.Doctors have sufficient time to see consultation and can have basic connections and communication with patients.Although this is an ideal, I believe such a hospital is appearing.We always lack experience in the inevitable life process.

No Borders patient | Shi Yonggang | People's Literature Press

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